Inflammatory Breast Cancer Research Foundation
In December 1996, an e-mail list was introduced focusing on education and emotional support for inflammatory breast cancer patients, their friends and families. That e-mail list and website remains and is known as IBC Support, which is owned and operated by Pete Bevin in Toronto, Canada.
In 1998 advocacy for meaningful research directed specifically at IBC was begun by a group of those who met on IBC Support. This small group started the IBC Research Foundation e-mail list. By 1999 that fledgling effort resulted in the incorporation of the non-profit Inflammatory Breast Cancer Research Foundation, a tax-deductible 501(c) (3) corporation.
The Inflammatory Breast Cancer Research Foundation conducts business and pursues its mission and goals in a 21st century fashion: no real estate, no rent, and with volunteers all over the country. We use the Internet to increase IBC awareness and provide accurate, current information about IBC and IBC research. An email discussion list connects volunteers around the world who support the mission and goals of the Foundation. A nationwide toll-free telephone number (1-877-stop-IBC or 1-877-786-7422) provides a direct connection with a human being and serves those with no internet access. We attend cancer conferences and symposiums each year to remain current with research and make contact with researchers, introducing many of them to the most aggressive breast cancer, IBC. We encourage researchers to include IBC biospecimen samples and/or patients in their research.
Research Grants Awarded
From 2009-2013, IBC research grants totalling $296,000 have been awarded to 9 researchers at 6 different institutions. These grants are only possible through the generous donations of supporters. Read more about the grants and grant recipients.
The Inflammatory Breast Cancer Research Foundation is a non-profit corporation dedicated to the support of research and public awareness. Proudly, over the course of the past seven years between 92% and 95% of all donations have gone directly to support the mission and goals of the Foundation. The Foundation has no corporate sponsors; we rely on many small, tax-deductible voluntary donations to pursue our commitment to finding the causes of IBC.