The following links provide information on cancer-related topics of interest to the inflammatory breast cancer community.
Help from the National Cancer Institute
NCI Drug Dictionary – contains technical definitions and synonyms for drugs/agents used to treat patients with cancer or conditions related to cancer. Each drug entry includes links to check for clinical trials listed in NCI’s PDQ® Cancer Clinical Trials Registry.
NCI Dictionary of Cancer Terms – includes search tips to look up a word or phrase, and definitions in English and Spanish.
NCI Glossary of Statistical Terms – includes brief definitions and plain language explanations for common statistical terms.
Organizations for Patients, Family and Caregivers
The American Association for Cancer Research’s Survivor and Patient Advocacy site. Includes information about the Scientist<->Survivor Program, educational materials on cancer research, opportunities for survivor advocates, and much more.
The American Cancer Society’s Cancer Survivors Network – “We celebrate by supporting one another, sharing our stories and what we’ve learned, and by living life to the fullest one day at a time.” http://csn.cancer.org/
Cancer.Net – The American Society of Clinical Oncology (ASCO) provides oncologist-approved cancer information for patients, family members, friends, and caregivers. Cancer.Net offers information to help patients and families make informed health-care decisions. All content is regularly reviewed by an editorial board consisting of leading medical, surgical, and radiation oncologists, along with oncology nurses, social workers, and patient advocates.
Dr. Susan Love Research Foundation. “We need to go beyond a cure. We need to stop people from ever getting breast cancer in the first place.”
Living Beyond Breast Cancer – Founded in 1991, LBBC is a national nonprofit education and support organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs and services include: a comprehensive educational website; the toll-free Survivors™ Helpline at (888) 753-LBBC (5222); large national conferences; free teleconferences; networking programs; quarterly educational newsletters; publications for medically underserved women; workshops and trainings for healthcare providers.
The National Cancer Institute’s Breast Cancer Home Page – pretty much everything one ever wanted to know about breast cancer. Very comprehensive site!
Essay
The Median Isn’t the Message – “It is the antidote both to those who say that, ‘the statistics don’t matter,’ and to those who have the unfortunate habit of pronouncing death sentences on patients who face a difficult prognosis. Anyone who researches the medical literature will confront the statistics for their disease. Anyone who reads this will be armed with reason and with hope.”
Etc., etc.
The Breast Cancer Stamp – “Breast Cancer Research First-Class Semipostal 55¢. It is valid for postage at the First-Class first-ounce letter rate in effect at the time of purchase. By law, 70 percent of the net amount raised is given to the National Institutes of Health and 30 percent is given to the Medical Research Program at the Department of Defense.”
