Inflammatory Breast Cancer Research Foundation BioBank and Clinical Database

The IBC Research Foundation BioBank and Clinical Database is a secure, privacy-protected collection of biological specimens from IBC-diagnosed patients ( and IBC patients who have died, those who are under legal age, and those living but unable to make decisions for themselves, may be consented to participate in the IBC Research Foundation BioBank by their authorized representative) and from those not diagnosed with IBC (controls), volunteering following a consent decision making process, and signing an Informed Consent.

Clinical data and a comprehensive questionnaire is obtained for those diagnosed with IBC. The forms and procedures have been approved by an Institutional Review Board, and operational aspects, including requests for samples and/or data for research purposes, are reviewed and approved by the Foundation’s Medical Advisory Board.

Help Research of Inflammatory Breast Cancer — Volunteer to Participate in the IBC BioBank!

Send a message to biobank@ibcresearch.org or call 1-877-Stop-IBC (1-877-786-7422) providing the following information:

  • Full name
  • Mailing address
  • Telephone number with area code
  • E-mail address

We’ll contact you to provide the materials for your consent. Let us know if you participated in Dr. Paul Levine’s George Washington University IBC Registry.