The IBC Research Foundation is continuing and expanding the scope of the important research of the George Washington University’s IBC Registry, which has been completed.
IBC BioBank
The continuing activity is called the IBC Research Foundation BioBank to help emphasize the importance of pathology samples, research results, as well as clinical records and questionnaires, and is approved by an Institutional Review Board.
The IBC Research Foundation BioBank is a secure, privacy-protected collection of biological specimens from ibc-diagnosed patients (cases, and, unlike the former George Washington University IBC Registry, ibc patients who have died, those who are under legal age, and those living but unable to make decisions for themselves, may be consented to participate in the IBC Research Foundation BioBank by their authorized representative) and from those not diagnosed with ibc (controls), volunteering following a consent decision making process, and signing an Informed Consent. Clinical Data and a comprehensive questionnaire will also be obtained for those diagnosed with ibc. The forms and procedures used have been approved by an Institutional Review Board, and operational aspects, including requests for samples and/or data for research purposes are reviewed and approved by the Foundation’s Medical Advisory Board, see below.
View a presentation of the IBC Research Foundation BioBank presented at the Era of Hope conference in Philadelphia on June 10, 2005 by Ginny Mason by clicking here.
Help Research of IBC — Volunteer to Participate in the IBC BioBank
How can you help research of IBC by participating in the IBC Research Foundation BioBank? Send a message to biobank@ibcresearch.org or call 1-877-Stop-IBC (1-877-786-7422) providing the following information:
- Full name
- Mailing address
- Telephone number with area code
- E-mail address
- Let us know if you participated in the George Washington IBC Registry of Dr. Levine.
We’ll contact you to provide the materials for your consent.
Thank You for Helping the Reasearch of IBC.
Medical Advisory Board of the Inflammatory Breast Cancer Research Foundation
- Mary B. Atkins, F.N.P., Family Nurse Practitioner, East Rockingham Health Center Elkton , VA
- Sunil S. Badve, M.D., Assistant Professor, Department of Pathology and Laboratory Medicine, Indiana University Hospital, Indianapolis, IN
- John H. Barton, Jr., M.D., Medical Oncologist, Tennessee Oncology, Murfreesboro , TN
- Olufunmilayo F. Olopade, M.B., B.S., FACP, Associate Professor, Dept. of Medicine and Committee on Genetics, Director, Center for Clinical Cancer Genetics, The University of Chicago Medical Center, Chicago, IL
- Douglas J. Schwartzentruber, M.D., FACS, Surgical Oncologist, Medical Director-Center for Cancer Care at Goshen Health System, Goshen , IN
- George W. Sledge, Jr., M.D., Professor of Medicine, Medical Oncologist, Hematology/Oncology, Indiana Cancer Pavilion, Indianapolis , IN
