IBC Research Foundation

Inflammatory Breast Cancer Research Foundation

Inflammatory Breast Cancer Research Foundation

Committed To Finding The Causes!

Focusing on Research and Awareness

Words From Newly Diagnosed IBC Patients

Newly diagnosed IBC patients who wish to remain anonymous have provided us with these examples.

I would like to thank you for this web site. This web site has helped me. I was having problems and the doctors was treating me for mastitis with medicine and it wasn’t working. My ultra sound and mammogram said that it was mastitis. I told the surgeon he had to do a biopsy, because I thought that I had IBC. He said he thought I needed another week of medicine and I said no, get me scheduled for surgery next week. Two weeks later they told me that I have IBC. I found your information helpful. Thank you for giving the information to fight this. I am hoping and praying that I get to raise my 2 year old son. I have started the road to fight this and beat it.

When I first experienced pain in my breast, I made an appointment with my internist and my OB/GYN. I found comfort when after both examinations, both doctors separately told me: “The good news is that cancer doesn’t hurt”. I held on to those words for five months before the pain and breast became worse and I was diagnosed with IBC.

I am 53 yrs. old. I was diagnosed with IBC in Jan. 2003. I first noticed something wrong with my left arm. It hurt and I couldn’t raise it as high as usual. I went to the Dr. at a clinic and they started by treating me for Mastitis. They did this for almost a year. I kept telling them something was very wrong. Then my breast started to hurt on the left side. I went to urgent care and the Dr. there said I had cancer and needed to see a surgeon. By then my nipple was inverted. I finally got to see a breast surgeon. He had given me some needle biopsies. They came back negative. I told them something was still wrong. They told me to put warm wash cloths on my nipple for 10 minutes twice a day. That was the strange part. Well that didn’t help and finally on the 24th of Jan. I was given a biopsy during surgery and was told on Jan. 31st of 2004 I had cancer. I had to be very persistent and almost aggressive to find out the truth. Then I told them I wanted a second Dr. to tell me the same thing since it took them so long.

The words “signs” and “symptoms” have different medical meanings. Symptoms are those problems that a patient notices or feels. Signs are those things that a physician can objectively detect or measure. For instance, a patient will feel hot, this is a symptom. The physician will touch the patient’s skin and note that it is warm and moist; this is a sign.