IBC patients (and one family member) have shared their experiences with IBC so that others may learn or be encouraged by them. They provide hope and reflect their joy in spite of being thrown into the unknown territory of the IBC community. These are their stories in their own words.

Want to add your IBC experience? Us the Contact Us form. Be sure to include your email address so we can get in touch.

Anne Abate

Anya Silver

Cindy C.


Phyllis Johnson

Gayla Little

Ginny Mason

Jo Pabon

Kate Strosser

Linda Rush

Lee Smith part 1 (getting Herceptin approved in Canada)

Lee Smith part 2

Lee Smith part 3

Wendy Oyler