Please browse the following links for more information on cancer-related topics of interest to the inflammatory breast cancer community. All links open in a new browser window.
Cancer. Net (formerly People Living With Cancer) – As a leader in the oncology community ASCO, the American Society of Clinical Oncology, has expanded it educational mission to provide oncologist-approved cancer information for patients, family members, friends, and caregivers. Cancer.Net, the cornerstone of ASCO’s patient resources program, provides oncologist-approved information to help patients and families make informed health-care decisions. All content is regularly reviewed by an Editorial Board consisting of leading medical, surgical, and radiation oncologists, along with oncology nurses, social workers, and patient advocates. Visitors to Cancer.Net will find:
- Guides to Cancer (comprehensive guides to more than 85 types of cancer)
- Clinical trials information
- Coping resources
- Strategies for managing side effects
- Ask the ASCO Expert series, including chats, Q&A forums, and event transcripts
- Medical illustrations
- Links to patient resource organizations
- Cancer information in Spanish
- Latest cancer news
- And much more
Breast Problems – This web page lists a number of questions related to varying kinds of breast problems, some of which are possible indicators of breast cancer.
Imaginis: What is Breast Cancer? – “Cancer is a group of diseases in which cells in the body grow, change, and multiply out of control. Usually, cancer is named after the body part in which it originated; thus, breast cancer refers to the erratic growth and proliferation of cells that originate in the breast tissue.“
Imaginis: Breast Pain – “Breast pain (mastalgia) is the most common breast related complaint among women; nearly 70% of women experience breast pain at some point in their lives.”
The Median Isn’t the Message – “It is the antidote both to those who say that, “the statistics don’t matter,” and to those who have the unfortunate habit of pronouncing death sentences on patients who face a difficult prognosis. Anyone who researches the medical literature will confront the statistics for their disease. Anyone who reads this will be armed with reason and with hope.”
Post-Surgery Breast Pain – This web site contains a wealth of knowledge about post-surgery breast pain and how to deal with it.
Susan Love, M.D. – “We need to go beyond a cure. We need to stop people from ever getting breast cancer in the first place.”
Living Beyond Breast Cancer – Living Beyond Breast Cancer, founded in 1991, is a national nonprofit education and support organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs and services include: a comprehensive educational website, LBBC.org; the toll-free Survivors’ Helpline at (888) 753-LBBC (5222); large national conferences; free teleconferences; networking programs; quarterly educational newsletters; publications for medically underserved women; workshops and trainings for healthcare providers; low-cost informational recordings; and the Paula A. Seidman Library and Resource Center. For more information, visit LBBC.org.
The Cancer Survivors Network – “Hello and welcome! You’ve entered a vibrant community established by people just like you whose lives have been touched by cancer. We hope you’ll find strength and inspiration from our personal stories, discussions and expressions of caring.”
The Breast Cancer Stamp – “The Stamp Out Breast Cancer Act (Public Law 105-41) resulted from the work of advocates for breast cancer research. This legislation led to the U.S. Postal Service’s issuance of a new first-class stamp, the Breast Cancer Stamp, which costs 40 cents and can be purchased on a voluntary basis by the public.”
Understanding Cancer – “This Web site contains graphic-rich tutorials for educational use by life science teachers, medical professionals, and the interested public.”
ASCO Patient Guide – “In 2001, ASCO published a clinical practice guideline about tumor markers for breast and colorectal cancers. The scope of this guideline was expanded and updated in 2007. This patient guide is based on ASCO’s recommendations and focuses specifically on breast cancer.”
The American Association for Cancer Research – The American Association for Cancer Research, AACR, was founded in 1907 by a group of 11 physicians and scientists interested in research, “to further the investigation and spread the knowledge of cancer.” Today, the AACR accelerates progress toward the prevention and cure of cancer by promoting research, education, communication and advocacy. AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research. Its reputation for scientific breadth and excellence attract the premier researchers in the field. The programs and services of the AACR foster the exchange of knowledge and new ideas among scientists dedicated to cancer research, provide training opportunities for the next generation of cancer researchers, and increase public understanding of cancer.
