Board of Directors

photo of RK VanOrsdahl

RK VanOrsdal
Artist, teacher, caregiver, aunt, cat mother, lover of Italy and the Renaissance.  Became immersed in the IBC world when an amazing friend was diagnosed. She’s still an amazing friend.  And RK’s still immersed.

photo of Ginny Mason
Ginny Mason
Ginny, a Registered Nurse, was diagnosed with IBC in 1994. Since then she has been a tireless educator and advocate for inflammatory breast cancer. In addition, she squeezes in time with her grandchildren whenever possible.
photo of Carol McWilliams

Carol McWilliams
Carol was diagnosed with stage IIIB triple negative IBC in August 2003. Although she whines about her thin, chemo curly hair, Carol is doing well.
photo of Phyllis Johnson
Phyllis Johnson
Since her diagnosis with hormone-receptor negative, HER2 positive IBC in 1998, Phyllis has been active in various on-line IBC support groups. A retired teacher, she enjoys time with her grandchildren, traveling, and volunteering with the Inflammatory Breast Cancer Research Foundation. 

Jennifer Sickles
Jennifer’s sister was diagnosed with breast cancer in 2013. She joined the board as Treasurer in 2015. Jennifer enjoys spending time with her children, niece and nephew.

Bryon Davis
Bryon’s aunt Kathy Milburn-Williams was diagnosed with Triple Negative IBC in 2006.  It didn’t take long for the family to conclude that more IBC research was needed.  Bryon has worked since 2007 to fund and build collaborations that support IBC research through the Milburn Foundation.




  • Virginia (Ginny) Mason, President and Executive Director
  • R. K. VanOrsdal, Vice President
  • Jennifer Sickels, Treasurer
  • Carol McWilliams, Secretary

Past Members of the Board of Directors

Inflammatory Breast Cancer Research Foundation thanks the following people for their service:

  • Owen Johnson, Founder and President Emeritus
  • Bee Johnson
  • Debbie McKinney
  • Gayla Little
  • Laurie Isenman
  • Pat Haugen
  • Anya Silver