Personal Experiences Stories

Over the years, people have shared their very personal experiences with inflammatory breast cancer to encourage and teach others. These are their stories in their own words.

IBC patients (and one family member) have shared their experiences with IBC so that others may learn or be encouraged by them. They provide hope and reflect their joy in spite of being thrown into the unknown territory of the IBC community. These are their stories in their own words.

Want to add your IBC experience? Us the Contact Us form. Be sure to include your email address so we can get in touch.

Kathy Milburn-Williams’ Triple Negative IBC Story [Interview with Kathy Milburn-Williams by Phyllis Johnson] “Don’t worry…
In March of 2011 I was diagnosed with Stage III (c) HER2-positive/HR-negative Inflammatory Breast Cancer…
Follow Brenda Denzler from her pre-IBC diagnosis in 2009 through chemotherapy, surgery, radiation and post-treatment…
What is Gamma Knife?The National Cancer Institute defines Gamma Knife therapy as “a treatment using…
To my IBC friends, I hope you get some inspiration from my story. My course…
My experience with Inflammatory Breast Cancer by Wendy Oyler I was diagnosed with IBC at…
Lose a Breast and Loosen a Tongue by Ginny Mason, R.N., BSNMarch 18, 1994…when I…
Anne Abate’s storyI have learned many things in the last few years. These are things…
[January 2019 Update]Kate said, “I intend to enjoy my life,” and she did just that.…
[January 2019 Update]Linda has retired from teaching school and is enjoying a busy and meaningful…
[January 2019 Update]It has been more than 10 years since this story was written and…
Gayla’s experience with inflammatory breast cancer [January 2019 Update]I am now 18 years out of…
[January 2019 Update]In the years since my treatment for hormone receptor negative, HER2 positive IBC,…
19-1/2 Years and Counting by CLB [author prefers to use initials] (October 2020) I am…
[January 2019 Update by Ginny Mason]For some a diagnosis of cancer is the end of…
Published on June 8, 2018 by TEDx TalksIn her powerful talk, Tatiana educates the audience…
Published May 2, 2017 by television station WFAA.comAfter 11 months of misdiagnosis, a biopsy confirmed…
Published November 22, 2014 by American Association for Cancer Research (AACR). Diagnosed HER2-positive, with stage…